Thursday, April 14, 2011

It's been an UGH week but God is FAITHFUL!

You know sometimes when you think "wow, everything has been going good, when's the bomb going to drop"? Well, this week was that bomb for us! Since Sunday's little "incident" with Tyler's hand we have also had some other "blows" that have been hard to swallow.

Since Tyler is where I left off let's continue with that.... Tyler has had fluid on his ears and although not infected, it was enough for the Dr and Audiologist to be concerned about. In addition, the Dr and his speech therapist have been a tad concerned about the nasality to his voice and the structure of his mouth. So, they recommended we go to our ENT Dr. We have had an ENT Dr here in Durango that is GREAT! So we called him, made an appointment and that was that UNTIL the night before...the ENT office called to let us know that when they last saw Tyler he was on Medicaid but now he is on CHP (state insurance) and they aren't a preferred provider for CHP! So, the next morning we got another referral from our Pediatrician to a different ENT and made another appointment.

The appointment was a disasster! Joel had to take Tyler because I couldn't get off (very hard for me but I think it was the best!). Basics of the appointment: Dr was mad that we hadn't seen him first, treated Joel like dirt due to being on CHP, said Tyler would have to "deal" with fluid on his ears and just have regular check-up to make sure it doesn't get infected, does have a minor cleft pallete issue but Tyler just has to "deal" with that although there is a surgery that can be done, Tyler will have chronic fluid on his ears but adjust! Yeah - SO not a good thing! However, he is the only ENT here that takes CHP. We are working with our audiologist to see if there is anything we can do and plan on a follow up with our Pediatrician to get his advice. So...that was that.

Same day as Tyler's appointment, Hannah had an audiologist appointment that morning as a follow-up to school hearing screening. We ALL thought it would just be a test error - even the audiologist. WRONG! Hannah has moderate hearing loss in her cochlear (inner ear) at the same level as the boys. The boys are worse only because they have mixed hearing loss - middle ear and inner ear. Result: Hannah now needs hearing aids as well. Talk about overwhelming for her and I! We both had some tears leaving the Audiologist's office...Since Tuesday Hannah has worked through it and although still nervous is accepting it. She will have TINY hearing aids that most people won't even see - they even were able to order the same color as her hair! How cool is that! However, I still have moments where I just can't grasp the fact that 3 of my kids - half of our family - will be wearing hearing aides! At approximately $2000 per hearing aid that is $12,000 walking around on my kids' ears! YIKES! This doesn't include the FM transmitters attached to Tyler's aides which is another $4,000. Although we have CHP and it pays for the hearing aides initially and the transmitters are the schools - we are responsible if anything breaks, gets lost, broken, etc! My mind reels at the thought!

In the midst of just plain being overwhelmed to the point I could hardly breathe - God brought a song on the radio. It is "Nearer My God to thee/Peace be still" by Allan Hall. I hadn't heard this arrangement before but the last part grabbed me SO hard and I just broke down in tears at the ability to rest in Him...

Here are the words to this beautiful song!
He says "Peace be still" Lifts His hands "Peace be still"
And like a child the winds obey him, When he says "peace be still"
He says "Peace be still" Lifts His hands "Peace be still"
And like a child, my heart obeys him When he says "Peace be still"

I have not found this song on You Tube yet and although put it on my computer, haven't been able to add it to a playlist - so you can google if you want to hear the whole thing but it is POWERFUL!!! I do have it on FB though. Also this week, I have had three close friends going through some job related issues and my heart has been heavy for them! However - I know that there is Peace when Christ speaks and am trusting Him for that!

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